Privacy Policy
A Word About Alzheimer’s Privacy Policy
Last Updated: November 11, 2025
1. Acceptance of Privacy Policy
Welcome to A Word About Alzheimer’s (“A Word About Alzheimer’s,” “we,” or “us”) and our Privacy Policy (“Privacy Policy”). This Privacy Policy is important and affects your legal rights, so please read carefully.
By accessing or using AWordAboutAlzheimers.org and various related websites and services (collectively, the “A Word About Alzheimer’s Services”), you agree to be bound by this Privacy Policy and all of the terms incorporated herein by reference. By using the A Word About Alzheimer’s Services and/or submitting or collecting any personal data via the A Word About Alzheimer’s Services, you accept, expressly consent, and agree to our practices surrounding the collection, use, and sharing of your personal information in accordance with this Privacy Policy. If you do not consent and agree with the terms of this Privacy Policy, you cannot, and we do not authorize you to access, browse, or use the A Word About Alzheimer’s Services.
Our processing of personal information, such as your name and city/state/country of residence, will be undertaken consistent with the requirements of applicable privacy laws, including, but not limited to, the California Consumer Privacy Act, the California Privacy Rights Act, the Virginia Consumer Data Protection Act of 2021, the Colorado Privacy Act of 2021, and the Utah Consumer Privacy Act of 2022, the Connecticut Data Privacy Act of 2022, the Texas Data Privacy and Security Act, the Oregon Consumer Privacy Act, the Montana Consumer Data Privacy Act, the Tennessee Information Protection Act of 2023, the Iowa Consumer Data Protection Act of 2023, the Delaware Personal Data Privacy Act of 2023, the Nebraska Data Privacy Act of 2024, the New Hampshire Privacy Act of 2024, the New Jersey Data Privacy Act of 2024, the Maryland Online Data Privacy Act of 2024, the EU General Data Protection Regulation, the UK General Data Protection Regulation, and the Canadian Personal Information Protection and Electronic Documents Act.
2. Information We Collect
2.1 Personal Information We Collect Directly from You
We receive personal information as described to you at the point of collection, pursuant to your consent, and/or when you voluntarily provide us with personal information, including:
(1) individual information (such as your city/state/country of residence);
(2) other identifying information that you voluntarily choose to provide to us, including without limitation unique identifiers such as passwords and personal information in messages you send to us.
We may also collect additional information, which may be personal information, as otherwise described to you at the point of collection or pursuant to your consent.
2.2 Information We Automatically Collect When You Use Our Site
In order to access and use certain areas or features of the A Word About Alzheimer’s Services, you consent to our collection and use of certain information about your use of the A Word About Alzheimer’s Services through the use of tracking technologies or by other passive means, including when you receive, open, engage, forward, and/or click through the Services. Your consent to our access and use of this “passively collected” information includes, but is not limited to, the domain name of the website that allowed you to navigate to the A Word About Alzheimer’s Services, search engines used, the internet protocol (“IP”) address used, the length of time spent on the A Word About Alzheimer’s Services, the pages you looked at on the A Word About Alzheimer’s Services, other webpages you visited before and after visiting the A Word About Alzheimer’s Services, the type of device and/or internet browser you have, the frequency of your visits to the A Word About Alzheimer’s Services, and other relevant statistics (collectively “Traffic Data”).
3. How We Collect Information
We collect information (including personal information and Traffic Data) when you use and interact with the A Word About Alzheimer’s Services, and in some cases from third party sources. Such means of collection include:
· When you access, use, or contact us through the A Word About Alzheimer’s Services.
· When you voluntarily provide information through the A Word About Alzheimer’s Services.
· If you use a location-enabled browser, we may receive information about your location and device.
· Through Cookies, Web Beacons, analytics services, and other tracking technologies (collectively, “Tracking Tools”).
4. Tracking Tools, Behavioral Advertising, and Opt‑Out Options
4.1 Tracking Tools
We may use tools outlined below in order to provide the A Word About Alzheimer’s Services, advertise to, and better understand users.
· Cookies: “Cookies” are small computer files transferred to your device that contain information such as user ID, user preferences, lists of pages visited, and activities conducted while using the A Word About Alzheimer’s Services. We use Cookies to: (i) improve and tailor the A Word About Alzheimer’s Services, (ii) measure performance, (iii) customize user experiences, and for (iv) analytics and fraud prevention. For more information on Cookies, including how to control your Cookie settings and preferences, visit http://www.allaboutCookies.org. You can also manage Cookies in your web browser (for example, Edge, Explorer, Chrome, Safari). If you choose to change your settings, you may find that certain functions or features of the A Word About Alzheimer’s Services will not work as intended. The following details the types of Cookies we use and why we use them:
o Absolutely Necessary Cookies. These Cookies are essential to enable you to move around a website and use its features.
o Performance Cookies. These Cookies collect information about how you use the A Word About Alzheimer’s Services. Information collected includes; the Internet browsers and operating systems used, the domain name of the website previously visited, the number of visits, average duration of visit, and pages viewed. These Cookies do not collect information that personally identifies you and only collect aggregated and anonymous information. Performance Cookies are used to improve the user-friendliness of a website and enhance your experience.
o Functionality Cookies. These Cookies allow the A Word About Alzheimer’s Services to remember choices you make (such as your username, language preference, or the area or region you are in) and provide enhanced, more personal features. These Cookies can also be used to remember changes you have made to text size, fonts, and other customizable parts of the A Word About Alzheimer’s Services. The information these Cookies collect may be anonymized, and they cannot track your browsing activity on other websites.
· Web Beacons: “Web Beacons” (a.k.a. clear GIFs or pixel tags) are tiny graphic image files embedded in a web page or email that may be used to collect information about the use of the A Word About Alzheimer’s Services. The information collected by Web Beacons allows us to analyze how many people are using the A Word About Alzheimer’s Services.
· Web Service Analytics: We may use third-party analytics services in connection with the A Word About Alzheimer’s Services, including, for example, to register mouse clicks, mouse movements, scrolling activity, and text typed into the A Word About Alzheimer’s Services. We use the information collected from these services to help make the A Word About Alzheimer’s Services easier to use and as otherwise set forth in Section 5 (How We Use Your Information). These analytics services generally does not collect personal information unless you voluntarily provide it.
· Mobile Device Identifiers: As with other Tracking Tools, mobile device identifiers help A Word About Alzheimer’s learn more about our users’ demographics and Internet behaviors in order to personalize and improve the A Word About Alzheimer’s Services. Mobile device identifiers are data stored on mobile devices that may track activities occurring on and through it, as well as the applications installed on it. Mobile device identifiers enable collection of personal information (such as media access control, address, and location) and Traffic Data.
4.2 Options for Opting out of Cookies and Mobile Device Identifiers
If we process Cookies based on your consent (as indicated at the time of collection of such data), you have the right to withdraw your consent at any point in time by contacting us at awordaboutalzheimers@gmail.com. Please note, if you exercise this right, you may have to provide your consent on a case-by-case basis to enable you to utilize some or all of the A Word About Alzheimer’s Services.
You may be able to reject Cookies and/or mobile device identifiers by activating the appropriate setting on your browser or device. Although you are not required to accept A Word About Alzheimer’s Cookies or mobile device identifiers, if you block or reject them, you may not have access to all features available through the A Word About Alzheimer’s Services.
· You may opt out of receiving certain Cookies by visiting the Network Advertising Initiative (“NAI”) opt‑out page or the Digital Advertising Alliance (“DAA”) opt‑out page, or by installing the DAA’s AppChoices app (for iOS; for Android) on your mobile device. When you use these opt‑out features, an “opt‑out” Cookie will be placed on your device indicating that you do not want to receive interest-based advertising from NAI or DAA member companies. If you delete Cookies on your device, you may need to opt‑out again. For information about how to opt‑out of interest-based advertising on mobile devices, please visit https://thenai.org/opt-out/mobile-opt-out/. You will need to opt‑out of each browser and device for which you desire to apply these opt‑out features.
· Even after opting out of Behavioral Advertising, you may still see A Word About Alzheimer’s advertisements that are not interest-based (i.e., not targeted toward you). Also, opting out does not mean that A Word About Alzheimer’s is no longer using Tracking Tools. A Word About Alzheimer’s still may collect information about your use of the A Word About Alzheimer’s Services even after you have opted out of Behavioral Advertising and may still serve advertisements to you via the A Word About Alzheimer’s Services based on information it collects through the A Word About Alzheimer’s Services.
This Privacy Policy does not cover the use of Cookies and other Tracking Tools by any third parties, and we are not responsible for the privacy practices of any third party. Please be aware that some third-party Cookies can continue to track your activities online even after you have left the A Word About Alzheimer’s Services.
4.3 “Do Not Track” (“DNT”) and Universal Opt‑Out Preference Signals
Some web browsers (including Safari, Internet Explorer, Firefox, and Chrome) incorporate a “Do Not Track” or similar feature that signals to web services that a visitor does not want to have their online activity and behavior tracked. If a web service operator elects to respond to a particular DNT signal, the web service operator may refrain from collecting certain personal information about the browser’s user. Not all browsers offer a DNT option and there is currently no industry consensus as to what constitutes a DNT signal. For these reasons, many web service operators, including A Word About Alzheimer’s, do not proactively respond to DNT signals. For more information about DNT signals, visit https://fpf.org/thank-you-for-visiting-allaboutdnt-com/.
New standards are being developed for a Universal Opt‑Out Mechanism, such as the Global Privacy Control (“GPC”), which allow users with GPC‑enabled browsers and devices to send a signal that will communicate the user’s request to opt‑out of sales of their personal information and to opt‑out of certain sharing of their personal information. The CPRA and other laws allow for the acceptance of Opt‑Out Preference Signals such as the GPC, as an option for users to transmit an opt‑out of selling/sharing personal information. If we detect and recognize such a signal from your device or browser, we will honor it.
5. How We Use Your Information
We do not engage in automated decision making. We may use information (including information that has been de‑identified and/or aggregated) to better understand who uses the A Word About Alzheimer’s Services and how we can deliver a better user experience. We use information, including personal information, to provide the A Word About Alzheimer’s Services and to help improve the A Word About Alzheimer’s Services, to develop new services, and to advertise our services. Specifically, such use may include:
· Providing you with the products, services, and information you request.
· Providing, maintaining, administering, or expanding the A Word About Alzheimer’s Services, performing business analyses, and for other internal purposes.
· Fulfilling our legal obligations, such as preventing, detecting, and investigating security incidents, fraud, and potentially illegal or prohibited activities.
· Enforcing our Privacy Policy and other agreements.
6. How We Share Your Information
In certain circumstances, and in order to perform the A Word About Alzheimer’s Services, we may share certain information about you as described in this section:
· We do not sell your personal information to third parties.
· We may share your personal information and/or Traffic Data with our partners who perform operational services for us (such as hosting, billing, fulfillment, data storage, security, insurance verification, web service analytics, or ad serving).
· We may share your personal information and/or Traffic Data with our partners to analyze device activities.
· We also may need to disclose your personal information or any other information we collect about you if we determine in good faith that such disclosure is needed to: (1) comply with or fulfill our obligations under applicable law; (2) protect the rights, property, or safety of you, A Word About Alzheimer’s, or another party; (3) enforce this Privacy Policy or other agreements with you; or (4) respond to claims that any posting or other content violates third-party rights.
7. Storage and Security of Information
Any information you send to us electronically, while using the A Word About Alzheimer’s Services or otherwise interacting with us, may not be secure when it is transmitted to us. We recommend that you do not use unsecure channels to communicate sensitive or confidential information to us. Please be aware, despite our best efforts, no security measures are perfect or impenetrable, and we cannot guarantee “perfect security.” Any information you send us through any means is transmitted at your own risk.
8. Your Choices
8.1 Information You Provide
You can choose whether or not to provide personal information through the A Word About Alzheimer’s Services. We will not discriminate against you for exercising any of your rights relating to your personal information.
8.2 California Privacy Rights
In the preceding 12 months, we collected and disclosed for a business purpose the following categories of personal information about California consumers:
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Identifiers:
Examples include name, address, email address, and IP address. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Personal information categories listed in the California Customer Records statute:
Examples include name, professional-related information, and employment-related information. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Protected classification characteristics under California or federal law:
Examples include name, age, citizenship, nationality, ancestry, religion or creed, marital status, medical condition, physical or mental disability, sex (including gender, gender identity, gender expression, pregnancy or childbirth and related medical conditions), sexual orientation, veteran or military status, and proof of eligibility to work. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Commercial information:
Examples include records of personal property, products or services purchased, obtained, or considered, or other purchasing or consuming histories or tendencies. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Internet or other similar network activity:
Examples include browsing history, search history, and information on a consumer’s interaction with the A Word About Alzheimer’s Services. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Geolocation data:
Examples include location and movement data. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Professional or employment-related information:
Examples include proof of eligibility to work, résumé, and other professional- or employment-related information. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Biometric information:
Examples include genetic, physiological, behavioral, and biological characteristics or activity patterns used to extract a template or other identifying information, such as fingerprints, faceprints, voiceprints, iris or retina scans, keystroke or gait patterns, and sleep, health, or exercise data. These are not collected. Recipients may include organizations providing services to A Word About Alzheimer’s.
Non-public education information:
Examples include education records directly related to a student that are maintained by an educational institution or its agents, such as grades, transcripts, class lists, schedules, identification codes, financial information, or disciplinary records. These are not collected, and there are no recipients.
Inferences from the foregoing:
Examples include profiles reflecting a person’s preferences, characteristics, psychological trends, predispositions, behaviors, attitudes, intelligence, abilities, or aptitudes. These are not collected, and there are no recipients.
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Purposes for Collection, Use, and Sharing. We use and disclose the personal information we collect for our commercial purposes, as further described in this Privacy Policy, including for our business purposes with our partners and service providers as follows:
· Legal compliance and auditing related to our interactions with you.
· Detecting security incidents, protecting against malicious, deceptive, fraudulent, or illegal activity, and exercising our related rights.
· Performing and improving out services (by us or our service provider(s)).
· Internal operations.
· Other one-time or short-term uses.
Your Rights. If you are a California resident you may have the following rights under the CCPA/CPRA in relation to personal information we have collected about you, to the extent required by the CCPA/CPRA and subject to verification:
Right to Know/Access: You have the right to request certain information about our collection and use of personal information about you as described below:
· The specific pieces of your personal information collected.
· The categories of your personal information collected.
· The categories of sources from whom your personal information is collected.
· The purpose for collecting your personal information.
· The categories of third parties with whom we have shared your personal information.
Right to Delete: You have the right to request that we delete certain personal information we have about you.
Freedom from Discrimination: You have the right to be free from unlawful discrimination for exercising any of your privacy rights.
Right to Correct: You have the right to request that we correct inaccurate personal information regarding the information you provide us.
Right to Restrict the Use of Sensitive Personal Information: You have the right to restrict the use of your sensitive personal information.
Right to Access Information on Automated Decision-Making: You have the right to access information collected through automated decision-making. Additionally, you can opt‑out of our use of automated decision-making related to your personal information.
To make a request in relation to the above rights, please contact us using the information in Section 14 below. To fulfil your request, we will need to verify your identity. Only you or someone legally authorized to act on your behalf may make a request related to your personal information. To designate an authorized agent, the authorized agent must provide sufficient information that allows us to reasonably verify that you authorize them to act on your behalf.
8.3 Canada, European Union, and United Kingdom Privacy Rights
If our processing of your personal information is subject to GDPR, UK GDPR, and/or PIPEDA, and unless subject to an exemption, you may have the following rights with respect to your personal information:
Right of Access: You have the right to view and request copies of your personal information.
Right to Rectification: You have the right to request that your inaccurate or outdated personal information be updated or corrected.
Right to be Forgotten/Right to Erasure: You have the right to request your personal data be deleted, upon providing verification to us.
Right to Restrict Processing: You have the right to request the restriction or suppression of our processing of your personal information.
Right to be Informed: You have the right to be informed about the collection and use of your personal information.
Right to Data Portability: You have the right to ask for your personal information to be transferred to you or to another controller.
Right to Withdraw Consent: You have the right to withdraw previously given consent to process your personal information.
Right to Object: You have the right to object to the processing of your personal information.
Right to Object to Automated Processing: You have the right to object to decisions being made with your personal information solely based on automated decision making or profiling.
We will need to verify your identity to process any requests described in this Section and may deny your request if we are unable to verify your identity. Government or other identification may be required.
If you are a resident of the European Economic Area (“EEA”), when we process your personal information, we will only do so in the following situations:
· We need to use your information to perform our responsibilities under our agreement with you.
· We have a legitimate interest in processing your personal information. For example, we may process your personal information to communicate with you about the A Word About Alzheimer’s Services, and to provide and improve the A Word About Alzheimer’s Services.
· We have your consent to do so.
If your personal data is subject to GDPR or UK GDPR, we will transfer personal data from the EEA to a location outside the EEA only when there has been a documented adequacy determination, or where we have confirmed adequate privacy protections. If your personal data is subject to PIPEDA, we will transfer personal data from Canada to locations outside Canada only where we have confirmed adequate privacy protections. If we transfer personal data to a third party acting as our agent, we will also obligate the third party to have adequate privacy protections in place.
9. How Long We Retain Your Information
We retain personal information about you for as long as necessary to provide you the A Word About Alzheimer’s Services. In some cases, we retain personal information for longer, if doing so is necessary to comply with our legal obligations, or as otherwise permitted by applicable law. Afterwards, we retain some information in a de‑identified and/or aggregated form but not in a way that would identify you personally.
10. Information Provided on Behalf of Children and Others
The A Word About Alzheimer’s Services are not intended for use by children. Individuals under the age of 18 may not use the A Word About Alzheimer’s Services. A Word About Alzheimer’s does not knowingly collect any information from children. If you are under 18, do not attempt to register for the A Word About Alzheimer’s Services or send us any personal information. By accessing, using, and/or submitting information through the A Word About Alzheimer’s Services, you represent that you are not younger than 18 and that you have authority to do so. If you are a parent or legal guardian of a minor child, you may, in compliance with this Privacy Policy, use the A Word About Alzheimer’s Services on behalf of such minor child. Information you provide through the A Word About Alzheimer’s Services on behalf of a minor child will be treated as personal information as provided herein. If you use the A Word About Alzheimer’s Services on behalf of another person, regardless of age, you represent and warrant that you have authority to do so.
11. Third Party Web Services
The A Word About Alzheimer’s Services may contain links or content from third‑party websites. A link or content from a third‑party website does not mean we endorse that website, the accuracy of information presented, or the persons or entities associated with that website. If you visit a third-party website, you are subject to the privacy policy of the applicable third party and we are not responsible for the policies and/or practices of any third party. We encourage you to ask questions before you disclose your information to others.
12. Updates and Changes to Privacy Policy
The effective date of this Privacy Policy is set forth at the top of this webpage. We will notify you of any material change by posting notice on this webpage. Your continued use of the A Word About Alzheimer’s Services after the effective date of any amendment to this Privacy Policy constitutes your acceptance of the amended Privacy Policy. We encourage you to periodically review this page for the latest information on our privacy practices. Any amended Privacy Policy supersedes all previous versions. IF YOU DO NOT AGREE TO FUTURE CHANGES TO THIS PRIVACY POLICY, YOU MUST STOP USING THE A Word About Alzheimer’s SERVICES AFTER THE EFFECTIVE DATE OF SUCH CHANGES.
13. Contact Us
The data controller for the purposes of GDPR, UK GDPR, PIPEDA or other data protection laws is A Word About Alzheimer’s. If you have any questions about this Privacy Policy, please contact us at awordaboutalzheimers@gmail.com.