Never in my life would I have imagined this to happen. Your mother was taken away but still here. An insidious disease that crept in and now creates so many emotions. I find myself grasping for those moments of the mom I knew before and fearing the mom I meet next, her personality forever changing. Always having to adapt to the new person you meet every day. It feels unfair. I always am reminding myself to appreciate today because today is likely something I will miss in the future. She did not deserve this, nobody does.

Anonymous, Family member

Ellicott City, MD

As a healthcare provider, working with patients who have dementia is both challenging and profoundly meaningful. Each individual’s journey through the various stages of the disease is unique, no two cases are ever quite the same. It is deeply difficult to witness the slow decline that dementia brings, especially as patients progress into its terminal stages. The gradual loss of memory, independence, and recognition can be heartbreaking not only for families but also for those of us who provide care.

Despite the sadness that often accompanies this disease, it is a privilege to support patients and their loved ones through such a vulnerable time. I would encourage providers and the family to offer compassionate care focusing on comfort, dignity, and honoring each patient’s wishes. While we cannot stop the progression of dementia, we can ensure that our patients (and families) feel valued, respected, and cared for every step of the way.

Christina Byam, Nurse practitioner

Washington, DC

Dealing with people with cognitive deficits is very unpredictable, you'll never know what version of the person you will see and get to mingle with. While it can be frustrating and disheartening at times, this presentation of dementia challenges me to change the way I interact with my patients and teaches me how to be more patient and understanding. They'll have good days, and not so good days, and while it's more challenging to engage them on their not-so-good days, it forces me to come up with creative ways to connect with them. Sometimes it will be successful, other times it will be a failure, but the most important thing is I get to come back and try again.

Anonymous, Professional treating people living with Alzheimer’s

Gaithersburg, MD

Sadly, some difficulties cannot be surmounted by patience and perseverance.

Jock, A son "missed" for far too long by Mother Nellie who was sadly unaware of her missing

Silver Spring, MD

I don’t have any signs of Alzheimer’s but have watched dear friends slowly sink into a different place because of the disease. I worry that may be me, one day. My greatest worry is that my kids would have to see me , and that it might poison, not just their “present” but some how rob them of happy, memories of their childhood, and that all their memories of me would be of the “Alzheimer’s me.”

Anonymous, Friend

Bethesda, MD

For a life that was enriched by travel, reading, and learning... it is incomprehensible that my special friend is absent from her loving family and friends. She is missed. I hope her photobooks bring her joy and smiles.

Donna D., A caring friend who has cherished memories

Port St. Lucie, FL

This is a wonderful way to share one's feelings and be supportive of one another. Thank you!

Anonymous, Family member

South Portland, ME

Friends dealing with family members often express frustration with how simple things in life become so much more difficult. As a researcher, I am also frustrated with how really promising new approaches constantly hit roadblocks.

Anne Messer, Friend, as well as a neurological disease researcher

Albany, NY

Having watched my family care for my grandfather, and later an aunt that helped raise me, frustration (and sadness) are the lingering feelings. Watching everyone trying to come up with solutions when there weren't any, was such a helpless state to be in. I've been exposed to it more recently as an adult when helping with a non-family member, and it actually hit me much harder, as the enormity of the task (of caring for another) became more real and overwhelming.

Pete, Family member (both grandfather and aunt passed away years ago)

Jupiter, FL

Anonymous, Other

Bethesda, MD

Seeing a friend who was an accomplished, published writer struggle as cognitive decline increases and she is more unable to manage.. I know her through our Buddhist meditation group, so the emphasis on the teachings of compassion particularly come to mind.

Anonymous, Friend

Falmouth, ME

It is so sad to watch an independent, vibrant person become dependent on others for basic needs. It is also upsetting to witness the loss of communication and ability to interact with me.

Anonymous, Family member

Philadelphia, PA

Alzheimer’s. Just the word makes me anxious these days. As I advance through my seventh decade on Earth, it’s become more common for friends, former colleagues or neighborhood acquaintances to share that they or a spouse have or are affected by Alzheimer’s. I used to have an irrational fear of dying from cancer. Then I got cancer, and beat it. I no longer worry about that. I do worry about Alzheimer’s -- for me, for my family. Even though I know ongoing research and new treatments offer hope to slow the progression, there is yet no cure. Am I irrational?

Anonymous, Friend

Takoma Park, MD

I work with people experiencing different forms of dementia. I see them losing abilities - memory, language, physical. .It can be so sad, but I try to support them and draw out any positive aspects and opportunities to help them enjoy their lives.

Anonymous, Professional treating people with Alzheimer’s

Bethesda, MD

That was the last word my sister said to me, after being at our family Christmas singalong. It had been many months since she'd been able to speak, but her enjoyment shone in her eyes and while leaving she did turn to me and say "fun." We can all be encouraged when fun is possible for those with Alzheimer's.

Anonymous, Family member

Bethesda, MD

Dr. Taryn Fortune, Professional treating people with Alzheimer’s

Silver Spring, MD

Anonymous, Friend

Bethesda, MD