Our Collective Story
Loss
I work with people experiencing different forms of dementia. I see them losing abilities - memory, language, physical. .It can be so sad, but I try to support them and draw out any positive aspects and opportunities to help them enjoy their lives.
Anonymous, Professional treating people with Alzheimer’s
Bethesda, MD
Fun
That was the last word my sister said to me, after being at our family Christmas singalong. It had been many months since she'd been able to speak, but her enjoyment shone in her eyes and while leaving she did turn to me and say "fun." We can all be encouraged when fun is possible for those with Alzheimer's.
Anonymous, Family member
Bethesda, MD
Life-changing
Dementia changes the life and the relationships of the person suffering with the disease as well as their caregivers and family members.
Anonymous, Family member
Baltimore, MD
Sadness
My older brother recently was diagnosed--he's in the early stages, in his mid-70s. I'm anticipating slowly losing him. I hope the sadness turns to acceptance. I also volunteer with hospice patients with dementia. I hope to show my brother the same tolerance I give my patients--sometimes that grace and patience is harder to give for family members who witness their loved-one's decline.
Anonymous, Family member, Volunteer helping people living with Alzheimer's
Silver Spring, MD
Unfair
Mom thoroughly enjoyed her life as a mother, grandmother, friend, educator, and world traveler. She understood how to live in the moment before mindfulness became popular. Now she can’t retrieve her lifetime collection of moments. Having a disease that forces one to live only in the present seems entirely different from choosing that state, especially at a time when memories are a huge part of appreciating a life well lived.
Amy G., Family member
Bethesda, MD
